it's a real first!

This is the best blog yet-no bad news! We got the last of Killian's labs and there is nothing wrong.It doesn't explain the leg pains but at this point we don't have to worry about tumors or cancer. What a great relief that everything in his blood is clear as well. He is doing better this week by far. From the looks of it last week he was coming off of the one med (is this a repeat? I swear I should read my old blogs)and it was making him all whacked out. God am I glad that's over with. We had no idea that's what was happening. It was a awful week and I wondered if Killian was going to be the way he was acting forever. It wouldn't have been a good life. Bailey is jealous of Killian's pediasure. She likes it as much as he does. Shes mad cause those cases of it aren't for her! I think I could add more but my brain is shutting down. It's after 10 and I haven't gotten to see Wayne. He came home with a migraine before I got home from work and has bee asleep. I spose I get to sleep on the couch.I don't want him to move and I want to read my book. Poor Wayne. o.k I lied maybe that's a bit o bad news. But sooooo close to sooo close!

quick update

All but one lab has come in for Killian. So far all is good. He has been a nightmare this week. I don't feel near as bad about wanting to throttle the kid now. He has been eating really well. the pediasure is helping with calories that he needs. He loves the stuff. This is the second time in his life he has needed it. This poor kid isn't ever going to have to worry about being the tallest in class! Anyway at least I have that good news. Oh yes and we found out today we got approved for a home loan!!! I so can't wait to get the hell outta this rental house. Maybe allot of our health issues will clear up. Well I'm off to put a pillow over Wayne's face..we are watching t.v. while he SNORES.

Time after time

It seems life is going always be hard for my family. Medicly speaking. Monday Wayne had two Dr's apointments and Killian had one. Waynes first was with our family Dr who seems to not do a damned thing for him except up his blood pressure meds everytime. Wayne still has very bad headaches and can't take much more. We don't know why. Blood pressure was part of it. Stress of couse too . But there is something else going on and this Dr is not taking it seriously enough. We are changing Dr's next apointment. The second Dr was a ear nose and throat specailst. He says he can so help Wayne with his nose. He has a 90% succsess rate. Wayne will be able to breathe and stop snoring. He will be able to come back to bed!! The couch has been very hard on him. Nobody wants to sleep on the couch for months on end. Iv'e offered many times for a night but he always turns me down. The surgery will stop the sinus infextions as well. We knew it would but it was nice to hear that from the Dr as well. At least that was a good apointment! Wayne has to have a catscan at the end of the month to get insurance to approve the surgery. Silly expensive..The Dr does have to have that scan to see what hes looking at doing and how messed up my poor hubbys nose is. So awsome for Wayne to be so close to releif! I wish Killians apointment could have gone better. It was awful and I did alot of crying. We took him off one med altogther because he lost to much weight on it. We now think that wasn't the whole reason. Killian had xrys of his legs done for starters becuase they hurt so much and it isn't consistent with growing pains. It turns out that nothing is wrong that shows in the exray. I only know that already because I know the tech that took the pics. I am so releaved that nothing was wrong with his legs or hips. My friend was freakin out because it was so much radation for a little boy to get. She could not sheild any part of Killians body because the hips had to be done as well. She was able to get what she needed in 7 shots instead of 25. She told me there was noway she would do that many on him. Then Killian had his blood drawn. There are about 6 tests that are being done. We won't know those results for awhile. We had to go back today to have more blood drawn because there wasn't enough drawn for one of the tests. It didn't go over well with Killian but he got through it. Since he went off the one med it has been awful with him. It's awful no matter what we seem to do. he has been uncontroble for the last couple days. Very mouthy, disrespectul, can't keep hands to himself, and doesn't listen. Sounds like a normal kid thing huh?? But it's not the same with him right now. It has been so bad I am worried about my job. I have to take both kids with me. he goes out to the hall and screams. I am sure my job is fine but it freaks me out to no end. I don't know what to do. Either i'm crying because he looks like death or frustrated because hes out of control. Compacted with Waynes issues makes for a stressful life. The postive thing about Killian right now is that he has been eating the last two days. Something that was hard to get him to do. He would cry and get so mad for us making him eat meals. He has been playing outside as well, soemthing else I could not get him to do at home. If anyone has a child or friend with adhd please please take the warnings very seriouly about the meds they go on. It almost killed my son. whatever else is wrong with him wasn't helped with it but made something worse. There are other options that aren't stimulants and are also made for ADHD. killian looked so gaunt and colorless. He will always be on the small side but never looked like he does now. children should not have dark circles under their eyes and look like they should be in a wheel chair. My poor boy hurts when he runs to much..and thats not always alot. Did the med make this worse as well?? I hope to find the answer.